Talia had a tough day yesterday. She is doing great walking and moving herself around but she had some pain adjusting to having the epidural taken out. The oral medication is now working and the pain managed. A side effect of the oral meds is a loss of appetite so this morning she had a tube added to get her calories up. 2300 / day is a lot to eat when you aren't feeling great. She isn't very happy about the tube.
Poor kid, I guess there are bound to be days like this. I'm sure the feed tube can't be that comfortable for her. And ... how are her parents doing? Awful to watch your child suffer ... you must be exhausted. Keep your spirits and your strength up. You'll need them. I hope the sun is shining at least. K
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